Resources

“The Brain Tumor Network believes no one should travel this path alone.”

Having access to informational resources will help to educate you about your brain tumor and provide guidance to help you form an effective care plan for your future. We have collected helpful resources from across the brain tumor community with detailed information about brain tumors, treatment, and related topics to assist in your information search.

American Brain Tumor Association
The American Brain Tumor Association’s mission is to advance the understanding and treatment of brain tumors with the goals of improving, extending, and ultimately saving the lives of those impacted by a brain tumor diagnosis.

American Cancer Society Cancer Action Network (ACS CAN)
Use your passion for politics to help enact laws and policies that will make cancer a top national priority. American Cancer Society Cancer Action Network℠, ACS CAN, volunteers work to make sure our leaders take real steps toward finishing the fight against cancer. 

National Brain Tumor Society
The National Brain Tumor Society invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners.

National Coalition for Cancer Survivorship
NCCS’ mission is to advocate for quality cancer care for all people touched by cancer.  Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life. NCCS has worked with legislators and policy makers to represent cancer patients and survivors in efforts to improve their quality of care and quality of life after diagnosis.

National Organization for Rare Disorders: Rare Action Network   
The RareAction Network® (RAN) is the nation’s leading advocacy network working to improve the lives of the 30 million Americans living with a rare disease at the state level. RAN serves as a broad spectrum of stakeholders ranging from patients, to their families, caregivers, and friends; from researchers to industry; to physicians and academia.

American Brain Tumor Association
The American Brain Tumor Association’s mission is to advance the understanding and treatment of brain tumors with the goals of improving, extending, and ultimately saving the lives of those impacted by a brain tumor diagnosis.

Adam Michael Rosen Foundation
The Adam Michael Rosen (AMR) Foundation, Inc. sets out to redefine cancer diagnoses by providing hope to all affected—especially patients and their families through direct financial assistance.

Brains for the Cure
With timely articles from scientific and personal perspectives, 200+ videos of physicians, caregivers, and patients sharing their stories, and resources developed to ease some of the journey through treatment, Brains for the Cure connects the brain tumor community to let those fighting know they are not alone.

Brain Tumor Funders’ Collaborative
The Brain Tumor Funders’ Collaborative is a partnership among five private philanthropic and advocacy organizations.

NCI-CONNECT
NCI-CONNECT builds partnerships to help patients with rare brain and spine tumors.

International Brain Tumor Alliance
The IBTA brings together experience and expertise from all over the world with the aim of enhancing the well-being and quality of life of brain tumor patients and their families. 

Society for Neuro-Oncology
The Society for Neuro-Oncology is a multidisciplinary organization dedicated to promoting advances in neuro-oncology through research and education.

The Sontag Foundation
The Sontag Foundation passionately supports people and organizations who make a significant and continuing impact in the lives of individuals and communities, primarily in the field of brain cancer research.

Acoustic Neuroma Association
The Acoustic Neuroma Association is the premier resource for the acoustic neuroma community. We inform, educate, and support those affected by acoustic neuroma brain tumors.

American Brain Tumor Association
The American Brain Tumor Association’s mission is to advance the understanding and treatment of brain tumors with the goals of improving, extending, and ultimately saving the lives of those impacted by a brain tumor diagnosis.

American Cancer Society
At the American Cancer Society, we’re on a mission to free the world from cancer. Until we do, we’ll be funding and conducting research, sharing expert information, supporting patients, and spreading the word about prevention. All so you can live longer – and better.

Brain Donor Project
The Brain Donor Project helps people become future brain donors. The Brain Donor Project connects potential donors with a brain bank in the NeuroBioBank, a network of brain banks that make brain tissue available to neurologic researchers. The NeuroBioBank is part of the National Institutes of Health (NIH), which is the primary U.S. agency responsible for biomedical and public health research.  

Brain Science Foundation
The Brain Science Foundation works to find a cure for primary brain tumors by advancing the understanding of brain function and patient care. The foundation supports cutting-edge research in all areas related to primary brain tumors, from developing and testing new treatments, conducting epidemiological studies, making improvements in patient care, and supporting basic research.

Central Brain Tumor Registry of the United States
A nonprofit research corporation, the Central Brain Tumor Registry is recognized by the international research community as the premier resource for annual histology-specific statistical information for all primary brain and other CNS tumors in the United States.

Epidermoid Brain Tumor Society
The mission of the Epidermoid Brain Tumor Society is to inform, educate, support, and fund research for those affected by the epidermoid brain tumor. We promote awareness and advocate for research for the epidermoid brain tumor.

Medline Plus
MedlinePlus is a service of the National Library of Medicine, the world’s largest medical library, part of the National Institutes of Health. Our mission is to present high-quality, relevant health and wellness information that is trusted, easy to understand, and free of advertising, in both English and Spanish. Anywhere, anytime, on any device – for free.

The Musella Foundation
The Musella Foundation For Brain Tumor Research & Information is a nonprofit public charity dedicated to helping brain tumor patients through emotional and financial support, education, advocacy, and fundraising for brain tumor research.

National Brain Tumor Society
The National Brain Tumor Society invests in, mobilizes, and unites our community to discover a cure, deliver effective treatments, and advocate for patients and care partners.

National Cancer Institute – Brain Tumor
NCI leads, conducts, and supports cancer research across the nation to advance scientific knowledge and help all people live longer, healthier lives.

Cancer Financial Assistance Coalition 
The Cancer Financial Assistance Coalition offers a searchable database of financial assistance programs for patients with cancer.

Darren Daulton Foundation
The Darren Daulton Foundation is committed to providing financial assistance to those who are impacted by brain cancer, brain tumors, and brain injuries. Applications are submitted online. Applicants MUST be a resident of Pennsylvania, New Jersey, or Delaware. 

Glenn Garcelon Foundation
The Glenn Garcelon Foundation is a non-profit organization which exists to improve the quality of life of brain tumor survivors, caregivers, and their families by providing emotional and financial support. 

Lazarex Foundation
Lazarex Cancer Foundation improves patient access to cancer clinical trials.

Michael Matters Foundation
The Michael Matters Foundation exists to help brain tumor patients and their families living in Illinois manage incidental costs while they are focused on their treatment. This support can help with costs such as gas, mortgage, utilities, groceries, medications and travel expenses. 

Mission4Maureen
Mission4Maureen provides financial assistance to families who are burdened by the staggering cost of brain cancer treatment

Patient Advocate Foundation
The Patient Advocate Foundations offers a searchable national financial resource directory, as well as case management services, co-pay relief, and financial relief funds. To learn more about their services, you can contact a member of their case management team at (800) 532-5274

Healthwell Foundation
Provides limited Assistance with the prescription drugs and biologics used in the treatment of glioblastoma multiforme or anaplastic astrocytoma. 

Musella Foundation
Provides limited financial assistance to families who need help covering the cost of certain medications used to treat Primary Malignant Brain Tumors (Grade 3 or 4). Covered medications include: Avastin, GliadelOptune, and Temodar 

NeedyMeds 
NeedyMeds is a national nonprofit that connects people to programs that will help them afford their medications and other healthcare costs. NeedyMeds educates and empowers those seeking affordable healthcare. 

PAN Foundation  
Provides a limited financial assistance for Glioblastoma Multiforme to assist with approved medications. 

RxAssist 
Rx Assist provides a comprehensive database of prescription assistance programs with application forms available at the website. RX Assist is a pharmaceutical access information center created by Volunteers in Health Care (VIH) a national resource center for safety net organizations.   

Academy of Nutrition and Dietetics
The Academy of Nutrition and Dietetics is committed to improving the nation’s health and advancing the profession of dietetics through research, education and advocacy. Find helpful resources about food, health, and fitness and learn more about how a Registered Dietitian can help you.   

American Association of Naturopathic Physicians
Learn more about the history, philosophy, and role of Naturopathic Physicians and locate a practitioner near you.  

Society for Integrative Oncology
The mission of the Society for Integrative Oncology is to advance evidence-based, comprehensive, integrative healthcare to improve the lives of people affected by cancer. Learn more about practice guidelines and accessing information through their Knowledge Center.  

National Cancer Institute
Learn more about Complementary and Alternative Medicine (CAM), how to find trusted resources, and talking about CAM with your health care provider.  

Memorial Sloan Kettering Cancer Center: Integrative Medicine  
Learn about Integrative Medicine, Mind-Body Therapies, Herbs, Botanicals, Dietary Supplements, and other products. Search MSKCC’s “About Herbs” online library for helpful information to help inform conversations with your care team.  

American Brain Tumor Association – Peer Matching Program
American Brain Tumor Association CommYOUnity™ Connect program pairs newly-diagnosed brain tumor patients and caregivers with “Mentors” who have been through a similar diagnosis. Often the best “medicine” is talking with someone who has walked in your shoes.

American Brain Tumor Association – Support Group Locator
American Brain Tumor Association CommYOUnity™ Connect program pairs newly-diagnosed brain tumor patients and caregivers with “Mentors” who have been through a similar diagnosis. Often the best “medicine” is talking with someone who has walked in your shoes.

CancerCare
Founded in 1944, CancerCare is the leading national organization providing free, professional support services and information to help people manage the emotional, practical, and financial challenges of cancer.

Cancer and Careers
Cancer and Careers empowers and educates people with cancer to thrive in their workplace by providing expert advice, interactive tools, and educational events.

Cancer Support Community
The Cancer Support Community is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. Explore their online and virtual resources including MyLifeLine or connect with a member of their Cancer Support Helpline at 888-793-9355.

Conquer Magazine
CONQUER magazine is the premier forum for patients with cancer initiated by the Academy of Oncology Nurse & Patient Navigators (AONN+).

CURE Magazine
CURE’s time tested approach combines science, humanity and technology to make cancer understandable for their patients and caregivers.

Get Palliative Care
Learn more about the goals and philosophy of palliative care and if it is right for your unique situation. Learn how to locate and request community-based services near you 

Hospice Foundation of America
Learn more about the goals and philosophy of hospice care. Learn how to access care, prepare for, and choose a hospice provider. Access caregiver resources and information on advanced care planning.  

My STORITM
Learn how this free mobile app, designed by the National Cancer Institute, can help you manage your symptoms and self-care activities.

National Brain Tumor Society: Brain Tumor Support Conversations 
The Brain Tumor Support Conversations are an online support group run by the brain tumor community for the brain tumor community. This group is attended and run by patients and care partners who have had firsthand experience with the challenges and effects of a brain tumor diagnosis. 

National Aphasia Association
The National Aphasia Association (NAA) is the first national organization dedicated to advocating for persons with aphasia and their families. Search their comprehensive aphasia-focused directory for support groups, aphasia centers and programs, as well as speech language professionals near you. Explore helpful resources and online materials.  

Optune® Buddy Program  
If you or a loved one is considering or has recently started Optune, it may help to talk to someone who has experience with Optune. You can connect directly with users and/or caregivers who want to share what they’ve learned through the Optune Buddy Program.   

Our Brain Bank  
OurBrainBank is a community of people affected by GBM supporting each other through live video chats, Facebook page, Facebook Group, or on Twitter and Instagram. Learn more about their patient-led movement and free app that helps patients and caregivers track symptoms, share data with clinicians, and donate data to medical research.  

T.H.E Brain Trust
The mission of The Healing Exchange Brain Trust is to improve the quality of life for people living with brain tumors and related conditions today.

Triage Cancer
Triage Cancer is a national, nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. 

UCSF Neuro-Oncology Gordon Murray Caregiver Program
The goal of this program is to ensure that family members and loved ones have the resources they need to feel prepared for their new roles as caregivers.

Looking for More Information?

Our compassionate Oncology Social Work Navigators are available to help you locate further resources specific to your unique need and situation.

View our Social Work Navigation Services and learn how our Navigators can get you connected to the information and support you’re searching for.