When 10-month-old William’s unusual eye movements led to an MRI, his parents were suddenly facing tumors in his optic nerves and brain. With a Brain Tumor Network nurse navigator by their side, they gained clear explanations, help during appointments, and steady support through long-term treatment.
When William was 10 months old, his parents noticed that his eyes were moving abnormally. What began as a possible vision issue led to an MRI that revealed something far more serious—tumors affecting his optic nerves and brain. With no safe way to perform a biopsy, his care team recommended a “watch and wait” approach, meaning frequent MRIs and eye exams.
As William’s parents tried to understand what this meant for their baby’s future, they reached out to Brain Tumor Network. That’s when they met their nurse navigator, who became a key part of their journey. She helped them understand the diagnosis, reviewed treatment options, and joined their appointments to ensure their questions were fully answered. She even documented detailed notes from complex medical visits so the family could process the information later.
When it came time to start treatment, the navigator provided education and emotional support to help ease the family’s fears and guide them through decisions about targeted therapy and chemotherapy. She also connected them to financial assistance resources to help with travel and medical costs, easing some of the stress that comes with long-term treatment.
Today, William continues his two-year chemotherapy plan while his parents remain hopeful and strong. Their navigator continues to check in regularly—offering knowledge, compassion, and calm reassurance during the toughest moments.
Our navigator was the most informative person in our whole process. She’s a God-sent angel who shows so much comfort and empathy. We cannot thank her enough for her help and emotional support during these life-changing moments.
At Brain Tumor Network, we’re honored to walk beside families like William’s—helping them find clarity, comfort, and strength through every stage of a child’s brain tumor journey.