Brain Tumor Network has met the needs of patients with primary brain tumors at every stage of their diagnosis. Read the stories below to hear firsthand from the patients and caregivers we have helped.
Harper
Meet Harper: A 13-year-old who loves soccer, making Tik Tok videos, and being with her family. After experiencing sporadic vomiting and multiple visits to the doctor, Harper was diagnosed…
Glen
It was a year ago yesterday, July 4th, 2022, when we found out Glen had a tumor the size of a golf ball, in his brain. On the left…
Gina
I am Gina, a 35-year-old wife, mother of two, and cardiac nurse practitioner. In March 2021, I had my second son. After my pregnancy, I began having frequent migraines…
Mandy
She went above and beyond and will forever hold a special place in my heart. My husband passed away less than a year after his diagnosis. My navigator made…
Clayton
Daniel
A veteran of the United States Army and Navy, Daniel returned to civilian life with a combination of symptoms that led to a diagnosis of a Traumatic Brain Injury…
Courtney
My name is Courtney. I am a thirty-year-old internal medicine physician living with brain cancer. My brain tumor journey started in January of 2020 when I was studying medicine…
Delores
It is hard to think of being diagnosed with a brain tumor. The shock set in, and the reality was difficult. I worried with thoughts like, “Will I be…
Letecia
On Monday, August 24, 2020, our entire lives changed. My husband and I are both physician assistants practicing internal medicine. He had just finished seeing a patient and was…
Katie
I cannot express how important the Brain Tumor Network and Kendra have been to our lives in this extremely difficult process. This service has helped ground us when we…
Lee
In July 2019, we went on the trip of our lives to Italy. It was amazing. On Sunday, August 25, 2019, we had gone on a beautiful mountain bike…
Davis
My son’s prefrontal cortex tumor was misdiagnosed in 2006. I didn’t worry about it, to the point where I almost forgot about it. Then in 2014, Davis was calling…
Fred
The Brain Tumor Network is a gift that was there for me before I ever knew I would need them. In April 2017, we thought we had the years…
Deborah
My beautiful 42-year-old daughter had a seizure and was diagnosed via biopsy with glioblastoma at North Shore University Hospital in Long Island, New York. We moved her treatment to…
Cathy
While researching GBM, I found an extremely kind, intelligent cancer biologist at the Ludwig Institute for Cancer Research who agreed to talk with me. He helped me to understand…
Ricki Lee
I was six months pregnant with our fifth child and we had just relocated to Texas from Oklahoma, after my husband accepted a new job. During the course of…
James
It seemed to all happen quite fast. For a couple of weeks, I was losing coordination of my left foot while riding my motorcycle and trying to shift it….
Kristin
I am an active duty military officer and a mother of three young children. When I was 34 years old, I suffered a grand mal seizure and was rushed…
Ron
My life changed in a matter of days. We were camping in our new motor home when my wife, Lynne, said to me, “Do you realize that your speech…
Chris
My husband, Chris, was diagnosed with an anaplastic astrocytoma in February of 2015. The diagnosis was, of course, devastating, and care for him began so swiftly. After his resection,…
Miranda
My sweet 23-year-old niece was full of joy, happiness, and love. One Sunday morning, while singing and playing music at church, she fell over with a seizure. She had…
Lisa
It all started with me not being able to smell a dead rat in my house. I went to the doctor, and he decided to do a brain MRI…
Anne
“On April 1st, I got a text from my brother-in-law: “Claire, I took your sister to the ER for signs of a stroke. Call the girls for prayers.” Given…
Jane
My journey began in 2008, when I was diagnosed with a meningioma brain tumor. It was a shock to me and to my family. Because the tumor was small…
DelRay
Our neuro-oncologist at the University of Minnesota gave us the contact information for the Brain Tumor Network. I emailed them right away, as it looked like my brother’s glioblastoma…
Ryan
I first learned about my brain tumor during a routine trip to the optometrist. After the regular exam, I asked if it was normal to have blind spots in…
Jeremy’s Patient Story
Sharon’s Caregiver Story
Brad’s Patient Story/Inspirational Message
Kate’s Caregiver Story