While no amount of information can eliminate the physical work and emotional challenge of caring for a loved one who has been diagnosed with a primary brain tumor, it helps to prepare for the road ahead.
The caregiver role, while crucial to patient care, is often overlooked and under-discussed. In addition to the the physical changes that can occur, individuals with brain tumors can experience mood, personality, and cognition changes. As a result, the caregiver often has a variety of responsibilities.
The following resources will help you provide meaningful, quality care to your loved one while also taking care of your own health and well-being. Our team of dedicated Oncology Social Workers can serve as an additional support resource and are available for one-on-one guidance.
Resources for Caregivers:
Orientation to Caregiving:
A Handbook for Family Caregivers of Patients with Brain Tumors
Managing Brain Tumor Side Effects and Symptoms
Caregiving at Home
Action Plan Worksheet
Video: A Guide to Postoperative Caregiving at Home
Video: How to Advocate for Your Loved One
What Is Uniquely Different in Caregiving
for Individuals with a Primary Brain Tumor?
Care for the Caregiver
Coping with Your Loved One’s Brain Tumor
Transition in Care for Patients with Brain Tumors: Palliative and Hospice Care
Making Sense of a Brain Tumor Diagnosis
The Brain Tumor Network offers a variety of Social Work Navigation Services at no cost to help support individuals with brain tumors and their loved ones through every step of the care journey.