Caregiver Resources

While no amount of information can eliminate the physical work and emotional challenge of caring for a loved one who has been diagnosed with a primary brain tumor, it helps to prepare for the road ahead.

The caregiver role, while crucial to patient care, is often overlooked and under-discussed. In addition to the the physical changes that can occur, individuals with brain tumors can experience mood, personality, and cognition changes. As a result, the caregiver often has a variety of responsibilities.

The following resources will help you provide meaningful, quality care to your loved one while also taking care of your own health and well-being. Our team of dedicated Oncology Social Workers can serve as an additional support resource and are available for one-on-one guidance.

Resources for Caregivers:

Orientation to Caregiving:
A Handbook for Family Caregivers of Patients with Brain Tumors

Caregiver Handbook:
Managing Brain Tumor Side Effects and Symptoms

Caregiving at Home
Action Plan Worksheet

Caring for the Caregiver: Prepare to Care

Video: A Guide to Postoperative Caregiving at Home

UCSF Neuro-Oncology Gordon Murray Caregiver Program

Video: How to Advocate for Your Loved One

Brains for the Cure

What Is Uniquely Different in Caregiving
for Individuals with a Primary Brain Tumor?

Memorial Sloan Kettering Cancer Center

Care for the Caregiver

Coping with Your Loved One’s Brain Tumor

Transition in Care for Patients with Brain Tumors: Palliative and Hospice Care

Making Sense of a Brain Tumor Diagnosis

Looking for additional support?

Connect directly with one of our dedicated Oncology Social Work Navigators today to receive one-on-one guidance. Get Support Now and take the first step.



Brain Tumor Network offers a variety of Social Work Navigation Services at no cost to help support individuals with brain tumors and their loved ones through every step of the care journey.