Behind every patient is a caregiver holding the details, the emotions, and the late nights. We are here to stand with you, not just the person you care for.
Caregiver Navigation
Caregivers may grieve what has already changed while bracing for what lies ahead. This anticipatory grief is a normal response to serious illness. A dedicated navigator checks in over time, offers space to talk through emotions, and helps caregivers manage medical and daily challenges while staying connected to support.
Sometimes the most helpful care is being heard by people who understand. We help you find support groups, peer mentors, and small routines that give you room to breathe and recover.
We’ll help you look at likely costs, available programs, and ways to manage financial strain.
We’ll help you understand general coverage terms so you know more about your benefits and provide resources to help navigate insurance barriers.
We can walk you through advance care planning, long-term needs, and next steps so decisions feel less overwhelming.
Clear communication lowers tension. We offer language and strategies that make family updates easier.
Small changes in the home can ease stress. We help you figure out what will make the biggest difference.
You shouldn’t have to figure everything out alone. Here are ways we can help you stay steady and informed.
What We Do
When you reach out to Brain Tumor Network, you are connected with a dedicated navigator who takes the time to truly understand you, your role as a caregiver, your unique circumstances, and the challenges you’re facing. This first conversation is your space to share your story openly and honestly, including your hopes, fears, and questions, without any judgment.
Together, you and your navigator will identify and prioritize both your immediate and longer-term needs. Your navigator will explain how they can support you, what you can expect from them, and how you’ll work together throughout the care journey.
Your navigator will complete a thorough search for both community-based and national resources that best align with your needs. You’ll receive a comprehensive, easy-to-review list of options tailored specifically for your situation.
When you’re ready, you can schedule a follow-up call at your convenience to talk through those resources in more detail, ask questions, and begin putting next steps into place.
Your navigator remains available for ongoing check-ins at meaningful points along the way, as circumstances change and new challenges arise. With Brain Tumor Network, you are not navigating this alone.
BTN walks beside you as you care for your loved one. Our nurse and social work navigators listen to what you are facing, explain information in plain language, and point you to resources that fit your situation. We can talk through appointments, treatment information, daily challenges, and how to care for yourself while you care for a loved one.
Yes. Many caregivers tell us they feel like no one around them understands.
Your navigator can help you find:
We will talk with you about what kind of connection feels safest and most helpful right now.
Brain tumors affect the whole support system, not just the person with the diagnosis.
Our co-navigation model means you have access to both a nurse navigator and a social work navigator. Together, they can help you:
We are here for both of you. The patient and the people who love them.
Yes. This diagnosis often brings stress, conflict, and shifting roles. Your navigator can help you think through:
We cannot fix every conflict, but we can provide strategies, support, and resources to help.
BTN does not provide direct financial assistance. We can, however, help you explore options such as:
Your navigator will ask about your current situation and walk through what may be available.
It means your voice matters. When we talk through care plans, options, or changes at home, we want to hear from you too. Your questions, your worries, and your observations are important pieces of the story.
BTN makes space for caregivers to ask their own questions, share what they see day to day, and talk about how this experience is affecting them.
What BTN can do:
What BTN cannot do:
We are here to add a layer of guidance and support, not to take over your care or make decisions for you.
You can reach out whether you are brand new to this diagnosis or have been caregiving for years. Getting started is simple:
A navigator will learn more about your situation, explain how BTN works, and talk with you about what kind of support would help you most right now.
Caregiver