From insurance and disability questions to travel and support resources, our social work navigators help you sort next steps and find support that fits your life. For home, for family, for what comes next.
Care Through Every Phase
Life with a brain tumor brings questions that are emotional, practical, and deeply personal. Here are a few ways our team helps you steady the path ahead, connect with others, and prepare for what’s next.
Peer and Group Support for Both Patients and Caregivers
Real connection changes everything. We help you find support groups and peer mentors who understand this journey firsthand, giving you a place to talk openly and feel less alone.
Clarity on Insurance, Disability, and Workplace Rights
The paperwork side of cancer can feel endless. We break down how insurance and disability fit into your care, guide you through the steps ahead, and help you prepare early so later on you can focus on what matters most.
Guidance for Hard Conversations and Future Planning
Some moments in this journey are heavy. We sit with you in those discussions, whether you are talking about palliative care, hospice, or advance directives, and help you sort out what you want so future transitions feel clearer and less overwhelming.
Financial Guidance and Resources
Support for Bills, Budgets, and Care Costs
A brain tumor can turn finances upside down. Our team helps you look at the costs in front of you and explore possible sources of help. Together we search for grants, cost saving programs, and hospital or community resources so you are not trying to sort it all out on your own.
Social Work Support for Life Beyond the Hospital
Beyond treatment decisions, we’re here for your logistical questions about life outside of the diagnosis. A social work navigator listens to your story and connects you with practical and emotional support for your whole family.
Support for Emotions and Coping
Brain tumors can bring fear, stress, and a lot of unknowns. Our social work navigators listen without judgment, help you name what you are carrying, and share practical ways to cope. We stay present for you and your family, through grief, burnout, and the day to day weight of this journey.
Help With Home Care and Daily Needs
When care shifts to the home, the details add up fast. We help you sort through home care options, equipment needs, travel and lodging, and work questions. You get clear next steps and support that makes daily life feel more manageable.
Guidance for Palliative Care, Hospice, and Advance Directives
Some conversations are hard, and it helps to talk them through with someone who will not rush you. We support you as you consider palliative care, hospice, and advance directives, and help you think through what matters most to you and your family. Our goal is to bring clarity, reduce overwhelm, and help you feel supported in the decisions ahead.
We Do Hard Well
Help Us Be There for the Tough Conversations
Every day, families turn to Brain Tumor Network for help with emotions, financial worries, treatment choices, care decisions, and grief. Your donation keeps a navigator on the other end of the phone, ready to listen, guide, and walk beside families through what comes next.
Navigating Home Life
Helping Kids Understand What’s Happening
Talking about a brain tumor with children can be hard. Coloring Cancer is a free coloring book created in collaboration with our social work navigators to help children and families understand brain tumors in an age-appropriate way. It offers space to learn, ask questions, and cope together.
I look forward to every call with my social work navigator. With empathy and careful listening, she understands the questions I have not yet found words for and gently guides me through challenges with thoughtful ideas and suggestions.
C.
Patient