My beautiful 42-year-old daughter had a seizure and was diagnosed via biopsy with glioblastoma at North Shore University Hospital in Long Island, New York. We moved her treatment to Memorial Sloan Kettering Cancer Center seeking state-of-the-art, cutting-edge treatment and care. We soon realized that our options were limited, since there is no cure for this terrible disease. Our desperate quest for information, help, and guidance was about to begin.
I sought help from agencies all over the New York metropolitan area and beyond. It wasn’t until I connected with the Brain Tumor Network that Deborah and I felt rescued. Nurse Cathy French immediately arranged for me to gather Deborah’s voluminous medical records to facilitate submission for clinical trials.
The Brain Tumor Network helped make it possible for Deborah and I to travel to Duke University seeking treatment possibilities. They helped me to understand the choices that were available to us with their remarkable resources, knowledge, and experience.
Cathy French was our angel, a shoulder to lean on. We could not have gotten through this without her. I am still astounded by the total accessibility of Cathy and her colleagues. It was so comforting for me to talk to a professional nurse for advice and solace at anytime
I would like everyone to know that the Brain Tumor Network and its remarkable staff helped me survive an impossible and devastating situation and loss, and I am indebted to all you. You opened your hearts to me and Deborah as we navigated this difficult journey, and I love and thank you all.